Richter Syndrome targeted NGS (13 genes)

• HMB DUO:0000006 (version: 2019-01-07)health or medical or biomedical researchThis data use permission indicates that use is allowed for health/medical/biomedical purposes; does not include the study of population origins or ancestry.
• RS DUO:0000012 (version: 2019-01-07)research specific restrictionsThis data use modifier indicates that use is limited to studies of a certain research type.
• NPUNCU DUO:0000018 (version: 2019-01-07)not for profit, non commercial use onlyThis data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
• COL DUO:0000020 (version: 2019-01-07)collaboration requiredThis data use modifier indicates that the requestor must agree to collaboration with the primary study investigator(s).
• IRB DUO:0000021 (version: 2019-01-07)ethics approval requiredThis data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.
• PS DUO:0000027 (version: 2019-01-07)project specific restrictionThis data use modifier indicates that use is limited to use within an approved project.
• IS DUO:0000028 (version: 2019-01-07)institution specific restrictionThis data use modifier indicates that use is limited to use within an approved institution.

Policy for Data Access concerning the Richter Syndrome Project

Data Use Conditions: - DUO:0000006 (Primary Code) - DUO:00000012, DUO:00000018, DUO:00000020, DUO:00000021, DUO:00000027, DUO:00000028 (Secondary Codes) Policy motivation: The international biomedical research project on Richter Syndrome called « Genomic and Proteomic Study of Richter Syndrome » is recorded on clinicaltrials.gov under reference identifier NCT03619512 and is promoted by the University Hospital of Nancy, France. European high standards for patients’ data protection are required: storage in a secure database, with access granted after consideration to academic researchers and collaborators, and for non-profit institutions. Patient identification from genomic data is prohibited.