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Collaborative Cohort of Cohorts for COVID-19 Research (C4R): Prevent Pulmonary Fibrosis (PrePF)
Cohort Description
Prevent Pulmonary Fibrosis (PrePF) has been investigating the clinical, physiologic and genetic phenotypes of interstitial lung disease (ILD) by focusing on families with two or more cases of ILD and individuals with sporadic IPF. It has recruited over 1,200 families with two or more cases of pulmonary fibrosis. These families with pulmonary fibrosis include 2,837 individuals with probable or definite idiopathic interstitial pneumonia (IIP) and 2,404 unaffected FDRs. In addition, PrePF recruited over 10,000 individuals with sporadic idiopathic pulmonary fibrosis (IPF).
Data Being Submitted
Wave 1 questionnaire data includes 397 variables for up to 585 PrePF participants in C4R
- Wave 2 questionnaire data includes 448 variables for up to 370 PrePF participants in C4R
- Dried Blood Spot/Serosurvey data includes 7 variables for up to 206 PrePF participants in C4R
- Derived data includes 43 variables for up to 585 PrePF participants in C4R
- Phenotype data includes 113 variables for up to 585 PrePF participants in C4R