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OncoScan SNP data set for localized follicular lymphoma (lFL)

149 unpaired initial tumor samples (133/149 FFPE and 16/149 fresh frozen samples) of lFL patients measured with OncoScan SNP microarrays, Affymetrix CEL intensity data file types (Thermo Fisher Scientific, Waltham, Massachusetts, USA)

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Data access policy for data in the study "Genomic profiling of localized (lFL) and systemic follicular lymphoma (sFL) reveals novel insights into FL pathogenesis"

DATA ACCESS AGREEMENT between Robert-Bosch-Krankenhaus GmbH, represented by the medical executive director Prof. Dr. Mark Dominik Alscher, Auerbachstr. 110, 70376 Stuttgart, Germany Performed by: Department of Clinical Pathology, Robert-Bosch-Krankenhaus, Auerbachstr. 110, 70376 Stuttgart Head of Department of Clinical Pathology: Prof. Dr. German Ott Investigator: Dr. Heike Horn hereinafter collectively referred to as “Path RBK” and <User Institution> Hereinafter referred to as “User Institution” These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom Path RBK grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: Path RBK and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. Data will not be used for any other purpose or for any commercial purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The data provided is anonymized. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. The disclosure of Data to External Collaborators requires Path RBK’s prior consent. 6. The User Institution agrees that Path RBK, other Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. Notwithstanding User Institution`s confidentiality obligations, User Institution will have the right to publish and disclose the final results of the research based on the Data. In order to balance this right with Path RBK`s proprietary interests, User Institution will submit for Path RBK`s review all manuscripts, abstracts or presentations intended for publication or other public disclosure (“Publications”) at least forty-five (45) days prior to the date of submission for publication or public disclosure for the sole intent of removing any Path RBK confidential information from the Publication. Path RBK will provide any comments to User Institution within forty-five (45) days of receipt of the Publications. The User Institution agrees to use the Data in compliance with all applicable statutes and regulations, including Public Health Service and National Institutes of Health regulations and guidelines. 8.The User Institution agrees to follow the Publication Policy in Appendix III. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and agrees to notify the Path RBK upon filing for intellectual property rights. If applicable, User Institution and Path RBK will enter into a separate collaborative agreement to govern the terms of any such intellectual property. 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify Path RBK within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify Path RBK prior to any significant changes to the protocol for the Project. 14. The User Institution will notify Path RBK as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. Path RBK may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary Path RBK to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Path RBK. In the event that changes are required, Path RBK will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement with a period of 2 weeks after receipt of the changes. If the changes are accepted Path RBK and User Institution will enter into a written amendment documenting such changes. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement may be executed in separate counterparts, and delivered electronically (in .pdf format), and when so executed and delivered shall be an original and all such counterparts shall together constitute one and the same instrument. Agreed for User Institution Signature:   Name:   Title:   Date:   Principal Investigator I confirm that I have read and understood this Agreement. Signature:   Name:   Title:   Date:   Agreed for RBK Signature:   Name: Alscher, Mark Dominik   Title: Prof. Dr. Date: I confirm that I have read and understood this Agreement. Signature:   Name: Ott, German   Title: Prof. Dr. Date:   Signature:   Name: Horn, Heike  Title: Dr. Date:   APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY APPENDIX I – DATASET DETAILS Dataset reference (EGA Study ID and Dataset Details) to be anounced Name of project that created the dataset Genomic profiling of localized (lFL) and systemic follicular lymphoma (sFL) reveals novel insights into FL pathogenesis Names of other data producers/collaborators Prof. Dr. med. German Ott, +4971181013390, german.ott@rbk.de, Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus, Stuttgart Dr. rer. nat. Heike Horn, +4971181015763, heike.horn@ikp-stuttgart.de, Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus und Dr. Margarete Fischer-Bosch-Institut für Klinische Pharmakologie, Stuttgart Sabrina Kalmbach, +4971181012645, sabrina.kalmbach@ikp-stuttgart.de , Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus und Dr. Margarete Fischer-Bosch-Institut für Klinische Pharmakologie, Stuttgart Prof. Dr. med. Georg Lenz (main contact), +492518347587, georg.lenz@ukmuenster.de, Universitätsklinikum Münster Dr. rer. nat. Michael Grau, +4964212824332, michael.grau@ukmuenster.de, Universitätsklinikum Münster Dr. rer. nat. Myroslav Zapukhlyak, +491756371216, miroslav.zapukhlyak@ukmuenster.de, Universitätsklinikum Münster Specific limitations on areas of research These data are for non-profit use only. Redistributing these data to any other group is forbidden. Commercial development using these data is forbidden. Commercial entities are forbidden from access to the data. Safeguards to protect patient privacy and data redistribution must be fully described. In some instances, a protocol approved by the institutional review board may be needed to certify the use of the data. Minimum protection measures required File access: Data can be held in unencrypted files on an institutional compute system, with Unix user group read/write access for one or more appropriate groups but not Unix world read/write access behind a secure firewall. Laptops holding these data should have password protected logins and screenlocks (set to lock after 1-5 min of inactivity). If held on USB keys or other portable hard drives, the data must be encrypted. APPENDIX II – PROJECT DETAILS Details of dataset requested i.e., EGA Study and Dataset Accession Number Brief abstract of the Project in which the Data will be used (500 words max) All Individuals who the User Institution to be named as registered users | Name of Registered User | Email | Job Title | Supervisor* | All Individuals that should have an account created at the EGA | Name of Registered User | Email | Job Title | APPENDIX III – PUBLICATION POLICY In any publications based on these data, please cite this study using a reference for a journal article provided by Path RBK and describe how the data can be accessed, including the name of the hosting database (e.g., The European Genome-phenome Archive at the European Bioinformatics Institute) and its accession numbers, and acknowledge its use in a form agreed by the User Institution with Path RBK.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001006927 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00008249845 zip 9.3 MB
EGAF00008249848 zip 9.2 MB
EGAF00008249850 zip 9.5 MB
EGAF00008249851 zip 8.9 MB
EGAF00008249852 zip 8.8 MB
EGAF00008249853 zip 8.6 MB
EGAF00008249854 zip 9.0 MB
EGAF00008249857 zip 9.0 MB
EGAF00008249858 zip 9.4 MB
EGAF00008249861 zip 9.0 MB
EGAF00008249862 zip 8.9 MB
EGAF00008249868 zip 9.0 MB
EGAF00008249869 zip 9.2 MB
EGAF00008249871 zip 8.8 MB
EGAF00008249873 zip 8.7 MB
EGAF00008249874 zip 8.6 MB
EGAF00008249876 zip 8.8 MB
EGAF00008249877 zip 8.7 MB
EGAF00008249880 zip 9.0 MB
EGAF00008249881 zip 8.9 MB
EGAF00008249882 zip 9.3 MB
EGAF00008249887 zip 9.1 MB
EGAF00008249889 zip 8.9 MB
EGAF00008249895 zip 8.7 MB
EGAF00008249896 zip 8.6 MB
EGAF00008249898 zip 8.8 MB
EGAF00008249899 zip 8.7 MB
EGAF00008249900 zip 9.0 MB
EGAF00008249902 zip 9.1 MB
EGAF00008249903 zip 9.0 MB
EGAF00008249904 zip 9.1 MB
EGAF00008249905 zip 9.0 MB
EGAF00008249908 zip 8.6 MB
EGAF00008249909 zip 8.7 MB
EGAF00008249912 zip 8.6 MB
EGAF00008249914 zip 8.7 MB
EGAF00008249916 zip 9.3 MB
EGAF00008249918 zip 9.0 MB
EGAF00008249920 zip 9.1 MB
EGAF00008249921 zip 9.0 MB
EGAF00008249922 zip 9.1 MB
EGAF00008249923 zip 8.8 MB
EGAF00008249926 zip 8.9 MB
EGAF00008249927 zip 8.7 MB
EGAF00008249929 zip 8.6 MB
EGAF00008249930 zip 8.9 MB
EGAF00008249934 zip 9.0 MB
EGAF00008249936 zip 9.1 MB
EGAF00008249940 zip 8.6 MB
EGAF00008249941 zip 8.7 MB
EGAF00008249943 zip 8.8 MB
EGAF00008249944 zip 8.8 MB
EGAF00008249945 zip 9.1 MB
EGAF00008249946 zip 9.0 MB
EGAF00008249950 zip 9.1 MB
EGAF00008249953 zip 9.0 MB
EGAF00008249954 zip 9.1 MB
EGAF00008249955 zip 9.0 MB
EGAF00008249956 zip 9.1 MB
EGAF00008249957 zip 8.6 MB
EGAF00008249959 zip 9.1 MB
EGAF00008249961 zip 9.3 MB
EGAF00008249963 zip 8.8 MB
EGAF00008249965 zip 8.8 MB
EGAF00008249969 zip 8.9 MB
EGAF00008249971 zip 9.2 MB
EGAF00008249972 zip 8.8 MB
EGAF00008249973 zip 8.9 MB
EGAF00008249975 zip 9.0 MB
EGAF00008249976 zip 8.9 MB
EGAF00008249978 zip 8.7 MB
EGAF00008249981 zip 9.1 MB
EGAF00008249982 zip 8.8 MB
EGAF00008249983 zip 8.9 MB
EGAF00008249985 zip 9.1 MB
EGAF00008249986 zip 8.8 MB
EGAF00008249988 zip 9.0 MB
EGAF00008249989 zip 9.3 MB
EGAF00008249990 zip 9.1 MB
EGAF00008249992 zip 8.7 MB
EGAF00008249993 zip 9.0 MB
EGAF00008249994 zip 8.7 MB
EGAF00008249995 zip 9.0 MB
EGAF00008249996 zip 8.8 MB
EGAF00008249997 zip 9.0 MB
EGAF00008249998 zip 8.7 MB
EGAF00008250000 zip 8.9 MB
EGAF00008250002 zip 9.1 MB
EGAF00008250003 zip 9.1 MB
EGAF00008250005 zip 9.0 MB
EGAF00008250006 zip 9.0 MB
EGAF00008250008 zip 9.0 MB
EGAF00008250010 zip 9.1 MB
EGAF00008250013 zip 9.3 MB
EGAF00008250014 zip 9.3 MB
EGAF00008250017 zip 8.8 MB
EGAF00008250021 zip 8.6 MB
EGAF00008250024 zip 9.1 MB
EGAF00008250026 zip 8.7 MB
EGAF00008250028 zip 8.8 MB
EGAF00008250029 zip 9.1 MB
EGAF00008250032 zip 9.0 MB
EGAF00008250034 zip 9.1 MB
EGAF00008250035 zip 9.1 MB
EGAF00008250036 zip 8.9 MB
EGAF00008250037 zip 8.9 MB
EGAF00008250039 zip 8.9 MB
EGAF00008250041 zip 8.9 MB
EGAF00008250042 zip 8.9 MB
EGAF00008250043 zip 8.6 MB
EGAF00008250044 zip 8.7 MB
EGAF00008250045 zip 8.9 MB
EGAF00008250046 zip 8.8 MB
EGAF00008250047 zip 9.1 MB
EGAF00008250048 zip 9.0 MB
EGAF00008250049 zip 9.0 MB
EGAF00008250050 zip 8.6 MB
EGAF00008250051 zip 9.3 MB
EGAF00008250052 zip 9.1 MB
EGAF00008250053 zip 8.7 MB
EGAF00008250054 zip 9.3 MB
EGAF00008250056 zip 9.1 MB
EGAF00008250058 zip 8.7 MB
EGAF00008250059 zip 8.7 MB
EGAF00008250063 zip 9.4 MB
EGAF00008250066 zip 8.8 MB
EGAF00008250067 zip 8.7 MB
EGAF00008250070 zip 9.1 MB
EGAF00008250071 zip 9.1 MB
EGAF00008250076 zip 9.0 MB
EGAF00008250077 zip 9.3 MB
EGAF00008250079 zip 8.6 MB
EGAF00008250081 zip 9.0 MB
EGAF00008250083 zip 8.7 MB
EGAF00008250085 zip 9.2 MB
EGAF00008250086 zip 9.0 MB
EGAF00008250087 zip 8.9 MB
EGAF00008250089 zip 8.9 MB
EGAF00008250090 zip 8.8 MB
EGAF00008250093 zip 9.0 MB
EGAF00008250095 zip 9.0 MB
EGAF00008250096 zip 9.0 MB
EGAF00008250098 zip 9.0 MB
EGAF00008250100 zip 8.8 MB
EGAF00008250101 zip 9.0 MB
EGAF00008250102 zip 9.1 MB
EGAF00008250108 zip 9.1 MB
EGAF00008250109 zip 8.9 MB
EGAF00008250110 zip 8.6 MB
149 Files (1.3 GB)