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OncoScan SNP data set for systemic follicular lymphoma (sFL)

122 unpaired initial tumor samples (122 FFPE samples) of sFL patients measured with OncoScan SNP microarrays, Affymetrix CEL intensity data file types (Thermo Fisher Scientific, Waltham, Massachusetts, USA)

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Data access policy for data in the study "Genomic profiling of localized (lFL) and systemic follicular lymphoma (sFL) reveals novel insights into FL pathogenesis"

DATA ACCESS AGREEMENT between Robert-Bosch-Krankenhaus GmbH, represented by the medical executive director Prof. Dr. Mark Dominik Alscher, Auerbachstr. 110, 70376 Stuttgart, Germany Performed by: Department of Clinical Pathology, Robert-Bosch-Krankenhaus, Auerbachstr. 110, 70376 Stuttgart Head of Department of Clinical Pathology: Prof. Dr. German Ott Investigator: Dr. Heike Horn hereinafter collectively referred to as “Path RBK” and <User Institution> Hereinafter referred to as “User Institution” These terms and conditions govern access to the managed access datasets (details of which are set out in Appendix I) to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom Path RBK grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: Path RBK and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. Data will not be used for any other purpose or for any commercial purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The data provided is anonymized. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. The disclosure of Data to External Collaborators requires Path RBK’s prior consent. 6. The User Institution agrees that Path RBK, other Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. Notwithstanding User Institution`s confidentiality obligations, User Institution will have the right to publish and disclose the final results of the research based on the Data. In order to balance this right with Path RBK`s proprietary interests, User Institution will submit for Path RBK`s review all manuscripts, abstracts or presentations intended for publication or other public disclosure (“Publications”) at least forty-five (45) days prior to the date of submission for publication or public disclosure for the sole intent of removing any Path RBK confidential information from the Publication. Path RBK will provide any comments to User Institution within forty-five (45) days of receipt of the Publications. The User Institution agrees to use the Data in compliance with all applicable statutes and regulations, including Public Health Service and National Institutes of Health regulations and guidelines. 8.The User Institution agrees to follow the Publication Policy in Appendix III. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and agrees to notify the Path RBK upon filing for intellectual property rights. If applicable, User Institution and Path RBK will enter into a separate collaborative agreement to govern the terms of any such intellectual property. 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify Path RBK within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify Path RBK prior to any significant changes to the protocol for the Project. 14. The User Institution will notify Path RBK as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. Path RBK may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary Path RBK to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Path RBK. In the event that changes are required, Path RBK will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement with a period of 2 weeks after receipt of the changes. If the changes are accepted Path RBK and User Institution will enter into a written amendment documenting such changes. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement may be executed in separate counterparts, and delivered electronically (in .pdf format), and when so executed and delivered shall be an original and all such counterparts shall together constitute one and the same instrument. Agreed for User Institution Signature:   Name:   Title:   Date:   Principal Investigator I confirm that I have read and understood this Agreement. Signature:   Name:   Title:   Date:   Agreed for RBK Signature:   Name: Alscher, Mark Dominik   Title: Prof. Dr. Date: I confirm that I have read and understood this Agreement. Signature:   Name: Ott, German   Title: Prof. Dr. Date:   Signature:   Name: Horn, Heike  Title: Dr. Date:   APPENDIX I – DATASET DETAILS APPENDIX II ––PROJECT DETAILS APPENDIX III –– PUBLICATION POLICY APPENDIX I – DATASET DETAILS Dataset reference (EGA Study ID and Dataset Details) to be anounced Name of project that created the dataset Genomic profiling of localized (lFL) and systemic follicular lymphoma (sFL) reveals novel insights into FL pathogenesis Names of other data producers/collaborators Prof. Dr. med. German Ott, +4971181013390, german.ott@rbk.de, Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus, Stuttgart Dr. rer. nat. Heike Horn, +4971181015763, heike.horn@ikp-stuttgart.de, Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus und Dr. Margarete Fischer-Bosch-Institut für Klinische Pharmakologie, Stuttgart Sabrina Kalmbach, +4971181012645, sabrina.kalmbach@ikp-stuttgart.de , Abteilung für Klinische Pathologie, Robert-Bosch-Krankenhaus und Dr. Margarete Fischer-Bosch-Institut für Klinische Pharmakologie, Stuttgart Prof. Dr. med. Georg Lenz (main contact), +492518347587, georg.lenz@ukmuenster.de, Universitätsklinikum Münster Dr. rer. nat. Michael Grau, +4964212824332, michael.grau@ukmuenster.de, Universitätsklinikum Münster Dr. rer. nat. Myroslav Zapukhlyak, +491756371216, miroslav.zapukhlyak@ukmuenster.de, Universitätsklinikum Münster Specific limitations on areas of research These data are for non-profit use only. Redistributing these data to any other group is forbidden. Commercial development using these data is forbidden. Commercial entities are forbidden from access to the data. Safeguards to protect patient privacy and data redistribution must be fully described. In some instances, a protocol approved by the institutional review board may be needed to certify the use of the data. Minimum protection measures required File access: Data can be held in unencrypted files on an institutional compute system, with Unix user group read/write access for one or more appropriate groups but not Unix world read/write access behind a secure firewall. Laptops holding these data should have password protected logins and screenlocks (set to lock after 1-5 min of inactivity). If held on USB keys or other portable hard drives, the data must be encrypted. APPENDIX II – PROJECT DETAILS Details of dataset requested i.e., EGA Study and Dataset Accession Number Brief abstract of the Project in which the Data will be used (500 words max) All Individuals who the User Institution to be named as registered users | Name of Registered User | Email | Job Title | Supervisor* | All Individuals that should have an account created at the EGA | Name of Registered User | Email | Job Title | APPENDIX III – PUBLICATION POLICY In any publications based on these data, please cite this study using a reference for a journal article provided by Path RBK and describe how the data can be accessed, including the name of the hosting database (e.g., The European Genome-phenome Archive at the European Bioinformatics Institute) and its accession numbers, and acknowledge its use in a form agreed by the User Institution with Path RBK.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
EGAS00001006927 Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00008249842 zip 8.8 MB
EGAF00008249843 zip 8.8 MB
EGAF00008249844 zip 9.0 MB
EGAF00008249846 zip 8.6 MB
EGAF00008249847 zip 8.9 MB
EGAF00008249849 zip 8.7 MB
EGAF00008249855 zip 8.6 MB
EGAF00008249856 zip 8.9 MB
EGAF00008249859 zip 8.9 MB
EGAF00008249860 zip 8.9 MB
EGAF00008249863 zip 8.8 MB
EGAF00008249864 zip 8.8 MB
EGAF00008249865 zip 8.8 MB
EGAF00008249866 zip 8.8 MB
EGAF00008249867 zip 8.8 MB
EGAF00008249870 zip 8.7 MB
EGAF00008249872 zip 9.1 MB
EGAF00008249875 zip 9.0 MB
EGAF00008249878 zip 8.9 MB
EGAF00008249879 zip 8.8 MB
EGAF00008249883 zip 8.7 MB
EGAF00008249884 zip 8.8 MB
EGAF00008249885 zip 8.7 MB
EGAF00008249886 zip 8.7 MB
EGAF00008249888 zip 8.8 MB
EGAF00008249890 zip 8.7 MB
EGAF00008249891 zip 8.8 MB
EGAF00008249892 zip 9.0 MB
EGAF00008249893 zip 8.9 MB
EGAF00008249894 zip 9.0 MB
EGAF00008249897 zip 8.9 MB
EGAF00008249901 zip 8.7 MB
EGAF00008249906 zip 8.9 MB
EGAF00008249907 zip 8.7 MB
EGAF00008249910 zip 8.8 MB
EGAF00008249911 zip 8.8 MB
EGAF00008249913 zip 8.9 MB
EGAF00008249915 zip 8.6 MB
EGAF00008249917 zip 8.9 MB
EGAF00008249919 zip 8.9 MB
EGAF00008249924 zip 9.0 MB
EGAF00008249925 zip 9.0 MB
EGAF00008249928 zip 9.0 MB
EGAF00008249931 zip 8.8 MB
EGAF00008249932 zip 8.8 MB
EGAF00008249933 zip 8.4 MB
EGAF00008249935 zip 8.7 MB
EGAF00008249937 zip 8.8 MB
EGAF00008249938 zip 8.7 MB
EGAF00008249939 zip 8.8 MB
EGAF00008249942 zip 8.9 MB
EGAF00008249947 zip 8.9 MB
EGAF00008249948 zip 8.3 MB
EGAF00008249949 zip 8.7 MB
EGAF00008249951 zip 9.0 MB
EGAF00008249952 zip 8.5 MB
EGAF00008249958 zip 8.6 MB
EGAF00008249960 zip 8.9 MB
EGAF00008249962 zip 9.0 MB
EGAF00008249964 zip 8.7 MB
EGAF00008249966 zip 8.9 MB
EGAF00008249967 zip 8.6 MB
EGAF00008249968 zip 8.6 MB
EGAF00008249970 zip 8.4 MB
EGAF00008249974 zip 8.8 MB
EGAF00008249977 zip 9.0 MB
EGAF00008249979 zip 8.9 MB
EGAF00008249980 zip 8.6 MB
EGAF00008249984 zip 8.8 MB
EGAF00008249987 zip 8.5 MB
EGAF00008249991 zip 8.9 MB
EGAF00008249999 zip 8.7 MB
EGAF00008250001 zip 8.7 MB
EGAF00008250004 zip 8.9 MB
EGAF00008250007 zip 8.7 MB
EGAF00008250009 zip 8.9 MB
EGAF00008250011 zip 8.7 MB
EGAF00008250012 zip 8.4 MB
EGAF00008250015 zip 8.6 MB
EGAF00008250016 zip 8.9 MB
EGAF00008250018 zip 8.8 MB
EGAF00008250019 zip 8.8 MB
EGAF00008250020 zip 8.4 MB
EGAF00008250022 zip 8.8 MB
EGAF00008250023 zip 8.8 MB
EGAF00008250025 zip 8.7 MB
EGAF00008250027 zip 8.8 MB
EGAF00008250030 zip 8.7 MB
EGAF00008250031 zip 8.6 MB
EGAF00008250033 zip 8.9 MB
EGAF00008250038 zip 8.7 MB
EGAF00008250040 zip 8.9 MB
EGAF00008250055 zip 8.9 MB
EGAF00008250057 zip 8.7 MB
EGAF00008250060 zip 8.7 MB
EGAF00008250061 zip 8.8 MB
EGAF00008250062 zip 8.6 MB
EGAF00008250064 zip 8.9 MB
EGAF00008250065 zip 8.8 MB
EGAF00008250068 zip 8.8 MB
EGAF00008250069 zip 8.8 MB
EGAF00008250072 zip 8.8 MB
EGAF00008250073 zip 8.8 MB
EGAF00008250074 zip 8.6 MB
EGAF00008250075 zip 8.9 MB
EGAF00008250078 zip 8.9 MB
EGAF00008250080 zip 8.6 MB
EGAF00008250082 zip 8.8 MB
EGAF00008250084 zip 8.8 MB
EGAF00008250088 zip 8.9 MB
EGAF00008250091 zip 8.7 MB
EGAF00008250092 zip 8.9 MB
EGAF00008250094 zip 8.8 MB
EGAF00008250097 zip 8.9 MB
EGAF00008250099 zip 8.7 MB
EGAF00008250103 zip 8.7 MB
EGAF00008250104 zip 8.6 MB
EGAF00008250105 zip 8.9 MB
EGAF00008250106 zip 9.0 MB
EGAF00008250107 zip 8.9 MB
EGAF00008250111 zip 8.7 MB
EGAF00008250112 zip 8.8 MB
122 Files (1.1 GB)