WGS of NPC268_Tumor and NPC268_Cell_line

CRMY Genomic Data Sharing (GDS) Policy

Genomic Data Sharing (GDS) Policy Any user requesting access to the dataset must adhere to the regulations indicated by the European Genotype Archive (EGA) Data Access Committee (DAC) and the terms and conditions by Cancer Research Malaysia as follow: 1. Provision of data. Access to Data will be determined by the DAC. The Principal Investigator will be required to fill out the Data Access Agreement and complete the description of the Research Project. User will submit a completed Data Access Agreement for each research project for which Data are requested. The Data required to be transmitted between the parties will be uploaded to a secure server with the EGA. Each party will store and analyze Data electronically in a password protected database. 2. Non-transferability. The Data Access Agreement is not transferable. User agrees that substantive changes made to the Research Project and/or appointment by of another Principal Investigator to complete the Research Project, require execution of a new Data Access Agreement in which the new Principal Investigator and/or new Research Project are designated. 3. Control of Data. The parties agree that despite disclosure of Data to the user, the Data remains solely in Cancer Research Malaysia’s control for the purposes of the Personel Data Protection Act (PDPA) or equivalent. 4. Use of Data. The user agrees as follows: (a) the Data must be used only for the Research Purpose and no other use or commercial purpose; (b) the Data must not be used to contact any individual included in the Data; (c) all works must be written and presented in a way that ensures no individuals are or can be directly or indirectly identified. 5. Non-Identification. User agrees that Data will not be used, either alone or in conjunction with any other information, in any effort whatsoever to establish the individual identities of any of the Study participants from whom Data were obtained. 6. No Distribution. User agrees to retain control over Data, and further agrees not to transfer Data, with or without charge, to any other entity or any individual. 7. Acknowledgments. User agrees to acknowledge in all oral or written presentations, disclosures, or publications the specific dataset(s) or applicable accession number(s) and the data repositories resulting from any and all analyses of Data. Description: Decision to grant data access is subjected to DAC review and approval. Anonymised genomic data will be provided upon granted access. 1. User must not attempt to identify individual human research participants from whom the data were obtained. 2. Data must not be transferred to any other entity or any individual not listed on the Data Access Agreement. 3. Acknowledge in all oral or written presentations, disclosures, or publications the specific dataset(s) or applicable accession number(s) and the data repositories resulting from any and all analyses of Data.