RNAseq following stent placement and removal in a porcine model 

Data access policy for Ureter RNAseq Data in Porcine Models

This agreement governs the terms on which access will be granted to the sequencing data generated   in the "M Ureter RNAseq analysis following stent placement and removal in a porcine model  " modified from THE WELLCOME TRUST CASE-CONTROL CONSORTIUM DATA ACCESS AGREEMENT.  In signing this agreement, You are agreeing to be bound by the terms and conditions of  access set out in this agreement.  For the sake of clarity, the terms of access set out in this agreement apply both to the User  and the User’s Institution (as defined below). User Institution and User are referred to within  the agreement as “You” and “Your” shall be construed accordingly.  Definitions:  Consortium means Porcine Ureter RNAseq Data Access Committee  .  Data means all genetic data obtained from the Consortium.  Data Subject means a person, who has been informed of the purpose for which the Data is held and  has given his/her informed consent thereto.  User means a researcher whose User Institution has previously completed this Data Access  Agreement and has received acknowledgement of its acceptance.  Publications means, without limitation, articles published in print journals, electronic journals, reviews,  books, posters and other written and verbal presentations of research.  User Institution means the organisation at which the User is employed, affiliated or enrolled.  Terms and Conditions:  In signing this Agreement:  1. You agree to use the Data only for the advancement of medical research, according to the  consent obtained from sample donors.  2. You agree not to use the data for the creation of products for sale or for any commercial purpose.  3. You agree to preserve, at all times, the confidentiality of information and Data pertaining to Data  Subjects. In particular, You undertake not to use, or attempt to use the Data to compromise or  otherwise infringe the confidentiality of information on Data Subjects and their right to privacy.  4. You agree not to attempt to link the data provided under this agreement to other information or  archive data available for the data sets provided, even if access to that data has been formally  granted to you, or it is freely available without restriction, without specific permission being  sought from the relevent access committees.  5. You agree not to transfer or disclose the Data, in whole or part, or any identifiable material  derived from the Data, to others, except as necessary for data/safety monitoring or programme  management. Should You wish to share the Data with a collaborator outwith the same  Institution, the third party must make a separate application for access to the Data.  6. You agree to use the data for the approved purpose and project described in your application;  use of the data for a new purpose or project will require a new application and approval.  7. You accept that Data will be reissued from time to time, with suitable versioning. If the reissue is  at the request of sample donors and/or other ethical scrutiny, You will destroy earlier versions of  the Data.  8. You agree to abide by the terms outlined in the Consortium 'Publications Policy' as set out in  Schedule 1.  9. You agree to acknowledge in any work based in whole or part on the Data, the published paper  from which the Data derives, the version of the data, and the role of the Consortium and the  relevant primary collectors and their funders. Suitable wording will be provided once you contact Consortium.  10. You accept that the Consortium, the original data creators, depositors or copyright holders, or the  funders of the Data or any part of the Data supplied:  a) bear no legal responsibility for the accuracy or comprehensiveness of the Data; and  b) accept no liability for indirect, consequential, or incidental, damages or losses arising from  use of the Data, or from the unavailability of, or break in access to, the Data for whatever reason.  11. You understand and acknowledge that the Data is protected by copyright and other intellectual  property rights, and that duplication, except as reasonably required to carry out Your research  with the Data, or sale of all or part of the Data on any media is not permitted.  12. You recognise that nothing in this agreement shall operate to transfer to the User Institution any  intellectual property rights relating to the Data. The User Institution has the right to develop  intellectual property based on comparisons with their own data.  13. You accept that this agreement will terminate immediately upon any breach of this agreement by  You and You will be required to destroy any Data held.  14. You accept that it may be necessary for the Consortium or its appointed agent to alter the terms  of this agreement from time to time in order to address new concerns. In this event, the  Consortium or its appointed agent will contact You to inform You of any changes and You agree  that Your continued use of the Data shall be dependent on the parties entering into a new  version of the Agreement.  15. You agree that you will submit a report to the Consortium Data Access Committee, if requested,  on completion of the agreed purpose. The Consortium Data Access Committee agrees to treat  the report and all information, data, results, and conclusions contained within such report as  confidential information belonging to the User Institution.  16. You accept that the Data is protected by and subject to international laws and that You are responsible for ensuring compliance  with any such applicable law. The Consortium Data Access Committee reserves the right to  request and inspect data security and management documentation to ensure the adequacy of  data protection measures in countries that have no national laws comparable to that which  pertain in the EAA.