Disease specific alterations in the olfactory mucosa of patients with Alzheimer’s disease

The Data Access Committee for Human Olfactory Mucosa Cells (DAC_HOM) at UEF aims to coordinate rapid distribution of the data generated by DAC_HOM to the entire research community with minimal restrictions to accelerate the translation of new knowledge of health and diseases.

Policy for Data Access Requests from the Data Access Committee for Human Olfactory Mucosa Cells (DAC_HOM) at UEF. This document describes policy for data access requests from the Data Access Committee for Human Olfactory Mucosa Cells (DAC_HOM) at UEF. Accessing the UEF controlled access data The datasets are under controlled access. Data access can be applied from the DAC following the instructions of EGA (https://ega-archive.org/access/data-access). The DAC will evaluate the application according to the guidance for DACs by EGA (https://ega-archive.org/submission/data_access_committee) upon the receipt of a data access request. Upon submission of the data access request, you will be asked to provide the following details for DAC: Contact details of the main applicant and any individuals who would need to access the data A short scientific description of the project (ca. 500 words), describing how the datasets will be used or incorporated in the project. A letter of ethics approval for the project if required by the applicant’s home institution or by the country of the applicant’s institution. Application procedure To request access to data from the EGA, you will be asked to complete a basic application form and to agree to the terms and conditions laid out in the Data Access Agreement (DAA). The DAA must be signed by both a representative with institutional authority to sign on behalf of your organization, and the principal investigator responsible for the research project. You will also be requested to list personnel who will be granted access to the data for the purposes of the research project. If your application is successful, you will be asked to designate a “registered user”, under the authority of the principal investigator, who will be issued with a username and password by the EGA to enable access to the database. The DAC will consider applications that include named collaborators, but each institution must sign a separate DAA. Should you wish to share the data with additional collaborators not previously approved, they must make a separate application for access to the data. You agree to use the data only for the approved purpose and project described in your application; use of the data for a new purpose or new or expanded project will require a new application and approval. Acknowledgments Purpose adapted from the Blueprint Data Access Committee Terms of Reference. General principles adapted from the Blueprint Data Access Committee General Principles.