Dataset for the Pearl study

Data policy for Pearl

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access dataset to which the User has requested access. The User agrees to be bound by these terms and conditions. Definitions: Data means all and any human genetic data obtained from this study/dataset. User means a researcher who has previously completed the Data Access Agreement. User Institution means the organisation at which the User is employed, affiliated or enrolled. Publications means, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Terms and Conditions: In signing this Agreement: You agree to use the Data only for research purposes. You agree to preserve, at all times, the confidentiality of information and Data. You agree not to transfer or disclose the Data, in whole or part, or any identifiable material derived from the Data, to others, except as necessary for data/safety monitoring or programme management. Should You wish to share the Data with a collaborator outwith the same Institution, the third party must make a separate application for access to the Data. You agree to use the data for the approved purpose and project described in your application; use of the data for a new purpose or project will require a new application and approval. You agree to acknowledge in any work based in whole or part on the Data, the published paper from which the Data derives. You understand and acknowledge that the Data is protected by copyright and other intellectual property rights, and that duplication, except as reasonably required to carry out Your research with the Data, or sale of all or part of the Data on any media is not permitted. You recognise that nothing in this agreement shall operate to transfer to the User Institution any intellectual property rights relating to the Data. You accept that this agreement will terminate immediately upon any breach of this agreement by You and You will be required to destroy any Data held.