Subset of EGAS00001005112 (The INFORM Precision Medicine Study for High-Risk Pediatric Malignancies, 17 exomes) which is used in EGAS00001005243 (Radiation-induced gliomas represent H3-/IDH-wild type pediatric gliomas with recurrent PDGFRA amplification and loss of CDKN2A/B)

Policy to get data from the Inform register for academic research - RIG-WES data access

Commitment to data privacy protection for the usage of molecular data in academic research I undertake to use the sequencial and methylation data of patients ….. obtained in the context of the INFORM register, exclusively for academic research purposes, like stated in the patient informed consent. The research activities comprise examinations of molecular, genetic, immunologic and other characteristics of the tumor disease, as well as the development of new therapeutic options or diagnostic methods where appropriate. I presented the research project to the INFORM Data Access Committee. Further, I received professional legal advice or a positive vote by the ethic committee, respectively. Before publication, the INFORM coordinators will be asked for their approval. The manuscript will be presented to them for review at least 4 weeks before submission. All applicable data protection laws are respected. Genetic data will be encoded and stored separately from clinical data. I ensure that these data at our institution are protected against access by any third parties. The data will not be passed on to unauthorized third parties. Equally, the codes necessary for re-identification will not be passed on to unauthorized third parties. No attempt is made to identify the respective patient via their genetic data. Future publications will not allow any conclusion regarding the person’s identity.