hcWGS data of neuroblastoma patients

• DS DUO:0000007 (version: 2019-01-07)disease specific researchThis data use permission indicates that use is allowed provided it is related to the specified disease.ModifiersMONDO:0005072
• NPUNCU DUO:0000018 (version: 2019-01-07)not for profit, non commercial use onlyThis data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
• US DUO:0000026 (version: 2019-01-07)user specific restrictionThis data use modifier indicates that use is limited to use by approved users.

Transfer of patient sequencing/omics data requires a data transfer agreement to ensure that the regulations of the data protection law are fulfilled.

“I undertake to use the sequencing data exclusively for academic research purposes, like stated in the patient informed consent. The research activities comprise examinations of molecular, genetic, immunologic and other characteristics of the tumor disease, as well as the development of new therapeutic options or diagnostic methods where appropriate. I received professional legal advice or a positive vote by the ethic committee, respectively. All applicable data protection laws are respected. Genetic data will be encoded and stored separately from clinical data. I ensure that these data at our institution are protected against access by any third parties. The data will not be passed on to unauthorized third parties. Equally, the codes necessary for re-identification will not be passed on to unauthorized third parties. No attempt is made to identify the respective patient via their genetic data. Future publications will not allow any conclusion regarding the person’s identity.”