Whole Exome Sequences IberianRoma

Dataset with 81 whole exome sequences from Iberian Roma samples.

81 samples
DAC: EGAC00001001704
Technology: unspecified

Access Policy1 Study Files

Metadata

Request Access

POA DUO:0000011 (version: 2019-01-07)population origins or ancestry research onlyThis data use permission indicates that use of the data is limited to the study of population origins or ancestry.
GSO DUO:0000016 (version: 2019-01-07)genetic studies onlyThis data use modifier indicates that use is limited to genetic studies only (i.e., studies that include genotype research alone or both genotype and phenotype research, but not phenotype research exclusively)
NPUNCU DUO:0000018 (version: 2019-01-07)not for profit, non commercial use onlyThis data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
IRB DUO:0000021 (version: 2019-01-07)ethics approval requiredThis data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.
US DUO:0000026 (version: 2019-01-07)user specific restrictionThis data use modifier indicates that use is limited to use by approved users.
PS DUO:0000027 (version: 2019-01-07)project specific restrictionThis data use modifier indicates that use is limited to use within an approved project.
IS DUO:0000028 (version: 2019-01-07)institution specific restrictionThis data use modifier indicates that use is limited to use within an approved institution.

Data access policy for whole exome sequences and genome-wide array data of Iberian Roma samples.

DATA ACCESS AGREEMENT These terms and conditions govern access to the managed access datasets to which the User Institution has requested access. The User Institution agrees to be bound by these terms and conditions. Definitions Authorised Personnel: The individuals at the User Institution to whom Dr.David Comas grants access to the Data. This includes the User, the individuals listed in Appendix II and any other individuals for whom the User Institution subsequently requests access to the Data. Details of the initial Authorised Personnel are set out in Appendix II. Data: The managed access datasets to which the User Institution has requested access. Data Producers: Dr.David Comas and the collaborators listed in Appendix I responsible for the development, organisation, and oversight of these Data. External Collaborator: A collaborator of the User, working for an institution other than the User Institution. Project: The project for which the User Institution has requested access to these Data. A description of the Project is set out in Appendix II. Publications: Includes, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. Research Participant: An individual whose data form part of these Data. Research Purposes: Shall mean research that is seeking to advance the understanding of genetics and genomics, including the treatment of disorders, and work on statistical methods that may be applied to such research. User: The principal investigator for the Project. User Institution(s): The Institution that has requested access to the Data. David Comas 1. The User Institution agrees to only use these Data for the purpose of the Project (described in Appendix II) and only for Research Purposes. The User Institution further agrees that it will only use these Data for Research Purposes which are within the limitations (if any) set out in Appendix I. 2. The User Institution agrees to preserve, at all times, the confidentiality of these Data. In particular, it undertakes not to use, or attempt to use these Data to compromise or otherwise infringe the confidentiality of information on Research Participants. Without prejudice to the generality of the foregoing, the User Institution agrees to use at least the measures set out in Appendix I to protect these Data. 3. The User Institution agrees to protect the confidentiality of Research Participants in any research papers or publications that they prepare by taking all reasonable care to limit the possibility of identification. 4. The User Institution agrees not to link or combine these Data to other information or archived data available in a way that could re-identify the Research Participants, even if access to that data has been formally granted to the User Institution or is freely available without restriction. 5. The User Institution agrees only to transfer or disclose these Data, in whole or part, or any material derived from these Data, to the Authorised Personnel. Should the User Institution wish to share these Data with an External Collaborator, the External Collaborator must complete a separate application for access to these Data. 6. The User Institution agrees that the Data Producers, and all other parties involved in the creation, funding or protection of these Data: a) make no warranty or representation, express or implied as to the accuracy, quality or comprehensiveness of these Data; b) exclude to the fullest extent permitted by law all liability for actions, claims, proceedings, demands, losses (including but not limited to loss of profit), costs, awards damages and payments made by the Recipient that may arise (whether directly or indirectly) in any way whatsoever from the Recipient’s use of these Data or from the unavailability of, or break in access to, these Data for whatever reason and; c) bear no responsibility for the further analysis or interpretation of these Data. 7. The User Institution agrees to follow the Fort Lauderdale Guidelines (http://www.wellcome.ac.uk/stellent/groups/corporatesite/@policy_communications/documents/web_document/wtd003207.pdf ) and the Toronto Statement (http://www.nature.com/nature/journal/v461/n7261/full/461168a.html). This includes but is not limited to recognising the contribution of the Data Producers and including a proper acknowledgement in all reports or publications resulting from the use of these Data. 8. The User Institution agrees to follow the Publication Policy in Appendix III. This includes respecting the moratorium period for the Data Producers to publish the first peer-reviewed report describing and analysing these Data. 9. The User Institution agrees not to make intellectual property claims on these Data and not to use intellectual property protection in ways that would prevent or block access to, or use of, any element of these Data, or conclusion drawn directly from these Data. 10. The User Institution can elect to perform further research that would add intellectual and resource capital to these data and decide to obtain intellectual property rights on these downstream discoveries. In this case, the User Institution agrees to implement licensing policies that will not obstruct further research and to follow the U.S. National Institutes of Health Best Practices for the Licensing of Genomic Inventions (2005) (https://www.icgc.org/files/daco/NIH_BestPracticesLicensingGenomicInventions_2005_en.pdf ) in conformity with the Organisation for Economic Co-operation and Development Guidelines for the Licensing of the Genetic Inventions (2006) (http://www.oecd.org/science/biotech/36198812.pdf ). 11. The User Institution agrees to destroy/discard the Data held, once it is no longer used for the Project, unless obliged to retain the data for archival purposes in conformity with audit or legal requirements. 12. The User Institution will notify Dr.David Comas within 30 days of any changes or departures of Authorised Personnel. 13. The User Institution will notify Dr.David Comas prior to any significant changes to the protocol for the Project. 14. The User Institution will notify Dr.David Comas as soon as it becomes aware of a breach of the terms or conditions of this agreement. 15. Dr.David Comas may terminate this agreement by written notice to the User Institution. If this agreement terminates for any reason, the User Institution will be required to destroy any Data held, including copies and backup copies. This clause does not prevent the User Institution from retaining these data for archival purpose in conformity with audit or legal requirements. 16. The User Institution accepts that it may be necessary for the Data Producers to alter the terms of this agreement from time to time. As an example, this may include specific provisions relating to the Data required by Data Producers other than Dr.David Comas. In the event that changes are required, the Data Producers or their appointed agent will contact the User Institution to inform it of the changes and the User Institution may elect to accept the changes or terminate the agreement. 17. If requested, the User Institution will allow data security and management documentation to be inspected to verify that it is complying with the terms of this agreement. 18. The User Institution agrees to distribute a copy of these terms to the Authorised Personnel. The User Institution will procure that the Authorised Personnel comply with the terms of this agreement. 19. This agreement (and any dispute, controversy, proceedings or claim of whatever nature arising out of this agreement or its formation) shall be construed, interpreted and governed by the laws of Spain.

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID	Study Title	Study Type
	Whole Exome Sequences from Iberian Roma samples	Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID	File Type	Size
EGAF00004257630	fastq.gz	1.6 GB
EGAF00004257631	fastq.gz	1.6 GB
EGAF00004257632	fastq.gz	1.5 GB
EGAF00004257633	fastq.gz	1.6 GB
EGAF00004257634	fastq.gz	2.0 GB
EGAF00004257635	fastq.gz	2.0 GB
EGAF00004257636	fastq.gz	1.6 GB
EGAF00004257637	fastq.gz	1.7 GB
EGAF00004257638	fastq.gz	1.8 GB
EGAF00004257639	fastq.gz	1.9 GB
EGAF00004257640	fastq.gz	1.6 GB
EGAF00004257641	fastq.gz	1.6 GB
EGAF00004257642	fastq.gz	1.7 GB
EGAF00004257643	fastq.gz	1.7 GB
EGAF00004257644	fastq.gz	1.8 GB
EGAF00004257645	fastq.gz	1.8 GB
EGAF00004257646	fastq.gz	1.9 GB
EGAF00004257647	fastq.gz	2.0 GB
EGAF00004257648	fastq.gz	1.7 GB
EGAF00004257649	fastq.gz	1.8 GB
EGAF00004257650	fastq.gz	1.7 GB
EGAF00004257651	fastq.gz	1.7 GB
EGAF00004257652	fastq.gz	1.7 GB
EGAF00004257653	fastq.gz	1.7 GB
EGAF00004257654	fastq.gz	1.8 GB
EGAF00004257655	fastq.gz	1.9 GB
EGAF00004257656	fastq.gz	2.0 GB
EGAF00004257657	fastq.gz	2.0 GB
EGAF00004257658	fastq.gz	1.9 GB
EGAF00004257659	fastq.gz	1.9 GB
EGAF00004257660	fastq.gz	1.7 GB
EGAF00004257661	fastq.gz	1.7 GB
EGAF00004257662	fastq.gz	1.6 GB
EGAF00004257663	fastq.gz	1.6 GB
EGAF00004257664	fastq.gz	2.2 GB
EGAF00004257665	fastq.gz	2.3 GB
EGAF00004257666	fastq.gz	1.6 GB
EGAF00004257667	fastq.gz	1.7 GB
EGAF00004257668	fastq.gz	1.8 GB
EGAF00004257669	fastq.gz	1.9 GB
EGAF00004257670	fastq.gz	2.1 GB
EGAF00004257671	fastq.gz	2.2 GB
EGAF00004257672	fastq.gz	1.6 GB
EGAF00004257673	fastq.gz	1.7 GB
EGAF00004257674	fastq.gz	1.6 GB
EGAF00004257675	fastq.gz	1.7 GB
EGAF00004257676	fastq.gz	1.7 GB
EGAF00004257677	fastq.gz	1.8 GB
EGAF00004257678	fastq.gz	1.6 GB
EGAF00004257679	fastq.gz	1.7 GB
EGAF00004257680	fastq.gz	1.6 GB
EGAF00004257681	fastq.gz	1.6 GB
EGAF00004257682	fastq.gz	1.5 GB
EGAF00004257683	fastq.gz	1.6 GB
EGAF00004257684	fastq.gz	1.6 GB
EGAF00004257685	fastq.gz	1.7 GB
EGAF00004257686	fastq.gz	1.9 GB
EGAF00004257687	fastq.gz	1.9 GB
EGAF00004257688	fastq.gz	1.6 GB
EGAF00004257689	fastq.gz	1.6 GB
EGAF00004257690	fastq.gz	2.0 GB
EGAF00004257691	fastq.gz	2.0 GB
EGAF00004257692	fastq.gz	1.7 GB
EGAF00004257693	fastq.gz	1.7 GB
EGAF00004257694	fastq.gz	1.8 GB
EGAF00004257695	fastq.gz	1.9 GB
EGAF00004257696	fastq.gz	2.0 GB
EGAF00004257697	fastq.gz	2.0 GB
EGAF00004257698	fastq.gz	1.9 GB
EGAF00004257699	fastq.gz	2.0 GB
EGAF00004257700	fastq.gz	1.5 GB
EGAF00004257701	fastq.gz	1.6 GB
EGAF00004257702	fastq.gz	1.6 GB
EGAF00004257703	fastq.gz	1.6 GB
EGAF00004257704	fastq.gz	1.7 GB
EGAF00004257705	fastq.gz	1.8 GB
EGAF00004257706	fastq.gz	1.8 GB
EGAF00004257707	fastq.gz	1.8 GB
EGAF00004257708	fastq.gz	1.6 GB
EGAF00004257709	fastq.gz	1.6 GB
EGAF00004257710	fastq.gz	1.8 GB
EGAF00004257711	fastq.gz	1.9 GB
EGAF00004257712	fastq.gz	1.9 GB
EGAF00004257713	fastq.gz	2.0 GB
EGAF00004257714	fastq.gz	2.0 GB
EGAF00004257715	fastq.gz	2.1 GB
EGAF00004257716	fastq.gz	1.7 GB
EGAF00004257717	fastq.gz	1.8 GB
EGAF00004257718	fastq.gz	1.6 GB
EGAF00004257719	fastq.gz	1.6 GB
EGAF00004257720	fastq.gz	1.9 GB
EGAF00004257721	fastq.gz	1.9 GB
EGAF00004257722	1638184800213	1.5 GB
EGAF00004257723	fastq.gz	1.6 GB
EGAF00004257724	fastq.gz	1.6 GB
EGAF00004257725	fastq.gz	1.6 GB
EGAF00004257726	fastq.gz	1.7 GB
EGAF00004257727	fastq.gz	1.8 GB
EGAF00004257728	fastq.gz	1.6 GB
EGAF00004257729	fastq.gz	1.6 GB
EGAF00004257730	fastq.gz	1.8 GB
EGAF00004257731	fastq.gz	1.9 GB
EGAF00004257732	fastq.gz	1.8 GB
EGAF00004257733	fastq.gz	1.8 GB
EGAF00004257734	fastq.gz	1.9 GB
EGAF00004257735	fastq.gz	2.0 GB
EGAF00004257736	fastq.gz	1.6 GB
EGAF00004257737	fastq.gz	1.6 GB
EGAF00004257738	fastq.gz	1.8 GB
EGAF00004257739	fastq.gz	1.8 GB
EGAF00004257740	fastq.gz	1.6 GB
EGAF00004257741	fastq.gz	1.6 GB
EGAF00004257742	fastq.gz	1.7 GB
EGAF00004257743	fastq.gz	1.7 GB
EGAF00004257744	fastq.gz	2.2 GB
EGAF00004257745	fastq.gz	2.3 GB
EGAF00004257746	fastq.gz	1.8 GB
EGAF00004257747	fastq.gz	1.8 GB
EGAF00004257748	fastq.gz	1.8 GB
EGAF00004257749	fastq.gz	1.8 GB
EGAF00004257750	fastq.gz	2.0 GB
EGAF00004257751	fastq.gz	2.0 GB
EGAF00004257752	fastq.gz	1.9 GB
EGAF00004257753	fastq.gz	1.9 GB
EGAF00004257754	fastq.gz	2.1 GB
EGAF00004257755	fastq.gz	2.1 GB
EGAF00004257756	fastq.gz	2.1 GB
EGAF00004257757	fastq.gz	2.1 GB
EGAF00004257758	fastq.gz	1.8 GB
EGAF00004257759	fastq.gz	1.9 GB
EGAF00004257760	fastq.gz	1.7 GB
EGAF00004257761	fastq.gz	1.8 GB
EGAF00004257762	fastq.gz	1.6 GB
EGAF00004257763	fastq.gz	1.6 GB
EGAF00004257764	fastq.gz	1.9 GB
EGAF00004257765	fastq.gz	1.9 GB
EGAF00004257766	fastq.gz	2.1 GB
EGAF00004257767	fastq.gz	2.1 GB
EGAF00004257768	fastq.gz	1.8 GB
EGAF00004257769	fastq.gz	1.8 GB
EGAF00004257770	fastq.gz	1.8 GB
EGAF00004257771	fastq.gz	1.8 GB
EGAF00004257772	fastq.gz	1.8 GB
EGAF00004257773	fastq.gz	1.9 GB
EGAF00004257774	fastq.gz	1.8 GB
EGAF00004257775	fastq.gz	1.8 GB
EGAF00004257776	fastq.gz	1.4 GB
EGAF00004257777	fastq.gz	1.5 GB
EGAF00004257778	fastq.gz	1.6 GB
EGAF00004257779	fastq.gz	1.6 GB
EGAF00004257780	fastq.gz	1.8 GB
EGAF00004257781	fastq.gz	1.8 GB
EGAF00004257782	fastq.gz	1.6 GB
EGAF00004257783	fastq.gz	1.6 GB
EGAF00004257784	fastq.gz	1.7 GB
EGAF00004257785	fastq.gz	1.7 GB
EGAF00004257786	fastq.gz	1.6 GB
EGAF00004257787	fastq.gz	1.6 GB
EGAF00004257788	fastq.gz	1.8 GB
EGAF00004257789	fastq.gz	1.8 GB
EGAF00004257790	fastq.gz	1.4 GB
EGAF00004257791	fastq.gz	1.5 GB
162 Files (287.9 GB)