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Targeted sequencing of patients with neurodegenerative diseases

A targeted gene panel that covers coding, noncoding, and short tandem repeat regions improves the diagnosis of patients with neurodegenerative diseases

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The Chinese University of Hong Kong Hereditary Spastic Paraplegia Data Access Committee Data Access Agreement

The Chinese University of Hong Kong Hereditary Spastic Paraplegia Data Access Committee Data Access Agreement This agreement governs the terms on which access will be granted to the sequencing data generated by the Chinese University of Hong Kong Hereditary Spastic Paraplegia sequencing project. In signing this agreement, You are agreeing to be bound by the terms and conditions of access set out in this agreement. For the sake of clarity, the terms of access set out in this agreement apply both to the User and the User’s Institution (as defined below). User Institution and User are referred to within the agreement as “You” and “Your” shall be construed accordingly. Definitions: Committee means the Chinese University of Hong Kong Hereditary Spastic Paraplegia Data Access Committee, a group of investigators in the Chinese University of Hong Kong and Prince of Wales Hospital. Data means all and any human genetic data obtained from the Committee. Data Subject means a person, who has been informed of the purpose for which the Data is held and has given his/her informed consent thereto. User means a researcher whose User Institution has previously completed this Data Access Agreement and has received acknowledgement of its acceptance. Publications means, without limitation, articles published in print journals, electronic journals, reviews, books, posters and other written and verbal presentations of research. User Institution means the organisation at which the User is employed, affiliated or enrolled. Terms and Conditions: In signing this Agreement: 1. You agree to use the Data only for the advancement of medical research, according to the consent obtained from sample donors. 2. You agree not to use the data or any part thereof for the creation of products for sale or for any commercial purpose. 3. You agree to preserve, at all times, the confidentiality of information and Data pertaining to Data Subjects. In particular, You undertake not to use, or attempt to use the Data to compromise or otherwise infringe the confidentiality of information on Data Subjects and their right to privacy. 4. You agree not to attempt to link the data provided under this agreement to other information or archive data available for the data sets provided, even if access to that data has been formally granted to you, or it is freely available without restriction, without specific permission being sought from the relevent access committees. 5. You agree not to transfer or disclose the Data, in whole or part, or any identifiable material derived from the Data, to others, except as necessary for data/safety monitoring or programme management. Should You wish to share the Data with a collaborator outwith the same Institution, the third party must make a separate application for access to the Data. 6. You agree to use the data for the approved purpose and project described in your application; use of the data for a new purpose or project will require a new application and approval. 7. You accept that Data will be reissued from time to time, with suitable versioning. If the reissue is at the request of sample donors and/or other ethical scrutiny, You will destroy earlier versions of the Data. 8. You agree to abide by the terms outlined in the Committee 'Publications Policy' as set out in Schedule 1. 9. You agree to acknowledge in any work based in whole or part on the Data, the published paper from which the Data derives, the version of the data, and the role of the Committee and the relevant primary collectors and their funders. Suitable wording is provided in the Publications Policy given in Schedule 1. 10. You accept that the Committee, the original data creators, depositors or copyright holders, or the funders of the Data or any part of the Data supplied: a) bear no legal responsibility for the accuracy or comprehensiveness of the Data; and b) accept no liability for indirect, consequential, or incidental, damages or losses arising from use of the Data, or from the unavailability of, or break in access to, the Data for whatever reason. 11. You understand and acknowledge that the Data is protected by copyright and other intellectual property rights, and that duplication, except as reasonably required to carry out Your research with the Data, or sale of all or part of the Data on any media is not permitted. 12. You recognise that nothing in this agreement shall operate to transfer to the User Institution any intellectual property rights relating to the Data. The User Institution has the right to develop intellectual property based on comparisons with their own data. 13. You accept that this agreement will terminate immediately upon any breach of this agreement by You and You will be required to destroy any Data held. 14. You accept that it may be necessary for the Committee or its appointed agent to alter the terms of this agreement from time to time in order to address new concerns. In this event, the Committee or its appointed agent will contact You to inform You of any changes and You agree that Your continued use of the Data shall be dependent on the parties entering into a new version of the Agreement. 15. You agree that you will submit a report to the Committee Data Access Committee, if requested, on completion of the agreed purpose. The Committee Data Access Committee agrees to treat the report and all information, data, results, and conclusions contained within such report as confidential information belonging to the User Institution. 16. You accept that the Data is protected by and subject to international laws, including but not limited to the Hong Kong Personal Data (Privacy) Ordinance (Chapter 486), and that You are responsible for ensuring compliance with any such applicable law. The Committee Data Access Committee reserves the right to request and inspect data security and management documentation to ensure the adequacy of data protection measures in countries that have no national laws comparable to that which pertain in the EAA. 17. This agreement shall be construed, interpreted and governed by the laws of Hong Kong SAR, China and shall be subject to the non-exclusive jurisdiction of the courts in Hong Kong SAR, China.   SCHEDULE 1 Publications Policy The Committee anticipates that data generated from the project will be used by others, such as required for developing new analytical methods, in understanding patterns of polymorphism and in guiding selection of markers to map genes involved in specific diseases. Authors who use data from the project must acknowledge the Committee using the following wording "This study makes use of data generated by the Chinese University of Hong Kong Hereditary Spastic Paraplegia Data Access Committee." and cite the relevant publication (details of which can be found on the EGA project page). Users should note that the Committee bears no responsibility for the further analysis or interpretation of these data, over and above that published by the Committee.   For and on behalf of User: _____________________________________ Name of Applicant(s): _____________________________________ Signature of Applicant(s): _____________________________________ Date: _____________________________________ For and on behalf of User Institution: _____________________________________ Signature of Institutional or Administrative Authority: _____________________________________ Print name: ______________________________________ User Institution: ______________________________________ Date: ______________________________________ WHEN SUBMITTING THIS DOCUMENT, PLEASE INCLUDE ALL PAGES OF THE AGREEMENT WITH THIS SIGNATURE PAGE

Studies are experimental investigations of a particular phenomenon, e.g., case-control studies on a particular trait or cancer research projects reporting matching cancer normal genomes from patients.

Study ID Study Title Study Type
Other

This table displays only public information pertaining to the files in the dataset. If you wish to access this dataset, please submit a request. If you already have access to these data files, please consult the download documentation.

ID File Type Size Located in
EGAF00002529702 fastq.gz 179.1 MB
EGAF00002529703 fastq.gz 176.9 MB
EGAF00002529704 fastq.gz 394.5 MB
EGAF00002529705 fastq.gz 394.2 MB
EGAF00002529706 fastq.gz 482.1 MB
EGAF00002529707 fastq.gz 482.1 MB
EGAF00002529708 fastq.gz 733.0 MB
EGAF00002529709 fastq.gz 727.7 MB
EGAF00002529710 fastq.gz 421.4 MB
EGAF00002529711 fastq.gz 429.3 MB
EGAF00002529712 fastq.gz 496.5 MB
EGAF00002529713 fastq.gz 504.9 MB
EGAF00002529714 fastq.gz 701.4 MB
EGAF00002529715 fastq.gz 696.3 MB
EGAF00002529716 fastq.gz 615.8 MB
EGAF00002529717 fastq.gz 610.3 MB
EGAF00002529718 fastq.gz 537.3 MB
EGAF00002529719 fastq.gz 548.8 MB
EGAF00002529720 fastq.gz 505.1 MB
EGAF00002529721 fastq.gz 505.3 MB
EGAF00002529722 fastq.gz 531.2 MB
EGAF00002529723 fastq.gz 531.5 MB
EGAF00002529724 fastq.gz 515.6 MB
EGAF00002529725 fastq.gz 527.7 MB
EGAF00002529726 fastq.gz 619.4 MB
EGAF00002529727 fastq.gz 612.5 MB
EGAF00002529728 fastq.gz 494.2 MB
EGAF00002529729 fastq.gz 505.2 MB
EGAF00002529730 fastq.gz 710.2 MB
EGAF00002529731 fastq.gz 703.4 MB
EGAF00002529732 fastq.gz 639.9 MB
EGAF00002529733 fastq.gz 631.8 MB
EGAF00002529734 fastq.gz 528.9 MB
EGAF00002529735 fastq.gz 526.5 MB
EGAF00002529736 fastq.gz 613.0 MB
EGAF00002529737 fastq.gz 611.0 MB
EGAF00002529738 fastq.gz 713.7 MB
EGAF00002529739 fastq.gz 709.1 MB
EGAF00002529740 fastq.gz 624.8 MB
EGAF00002529741 fastq.gz 618.5 MB
EGAF00002529742 fastq.gz 480.5 MB
EGAF00002529743 fastq.gz 477.7 MB
EGAF00002529744 fastq.gz 501.3 MB
EGAF00002529745 fastq.gz 500.2 MB
EGAF00002529746 fastq.gz 513.6 MB
EGAF00002529747 fastq.gz 512.6 MB
EGAF00002529748 fastq.gz 460.1 MB
EGAF00002529749 fastq.gz 460.3 MB
EGAF00002529750 fastq.gz 458.6 MB
EGAF00002529751 fastq.gz 457.1 MB
EGAF00002529752 fastq.gz 434.2 MB
EGAF00002529753 fastq.gz 433.8 MB
EGAF00002529754 fastq.gz 480.3 MB
EGAF00002529755 fastq.gz 490.2 MB
EGAF00002529756 fastq.gz 501.3 MB
EGAF00002529757 fastq.gz 502.3 MB
EGAF00002529758 fastq.gz 698.7 MB
EGAF00002529759 fastq.gz 689.5 MB
EGAF00002529760 fastq.gz 688.0 MB
EGAF00002529761 fastq.gz 678.8 MB
EGAF00002529762 fastq.gz 760.3 MB
EGAF00002529763 fastq.gz 755.5 MB
EGAF00002529764 fastq.gz 86.8 MB
EGAF00002529765 fastq.gz 86.1 MB
EGAF00002529766 fastq.gz 486.0 MB
EGAF00002529767 fastq.gz 486.8 MB
EGAF00002529768 fastq.gz 541.9 MB
EGAF00002529769 fastq.gz 540.8 MB
EGAF00002529770 fastq.gz 656.1 MB
EGAF00002529771 fastq.gz 648.6 MB
EGAF00002529772 fastq.gz 469.9 MB
EGAF00002529773 fastq.gz 481.3 MB
EGAF00002529774 fastq.gz 521.7 MB
EGAF00002529775 fastq.gz 524.0 MB
EGAF00002529776 fastq.gz 487.9 MB
EGAF00002529777 fastq.gz 498.0 MB
EGAF00002529778 fastq.gz 483.1 MB
EGAF00002529779 fastq.gz 483.8 MB
EGAF00002529780 fastq.gz 529.6 MB
EGAF00002529781 fastq.gz 529.3 MB
EGAF00002529782 fastq.gz 510.1 MB
EGAF00002529783 fastq.gz 520.7 MB
EGAF00002529784 fastq.gz 495.0 MB
EGAF00002529785 fastq.gz 495.0 MB
EGAF00002529786 fastq.gz 605.0 MB
EGAF00002529787 fastq.gz 610.7 MB
EGAF00002529788 fastq.gz 640.3 MB
EGAF00002529789 fastq.gz 632.6 MB
EGAF00002529790 fastq.gz 475.2 MB
EGAF00002529791 fastq.gz 484.1 MB
EGAF00002529792 fastq.gz 710.2 MB
EGAF00002529793 fastq.gz 704.0 MB
EGAF00002529794 fastq.gz 549.1 MB
EGAF00002529795 fastq.gz 561.1 MB
EGAF00002529796 fastq.gz 488.4 MB
EGAF00002529797 fastq.gz 497.2 MB
EGAF00002529798 fastq.gz 523.3 MB
EGAF00002529799 fastq.gz 533.9 MB
EGAF00002529800 fastq.gz 537.3 MB
EGAF00002529801 fastq.gz 548.4 MB
EGAF00002529802 fastq.gz 635.5 MB
EGAF00002529803 fastq.gz 626.4 MB
EGAF00002529804 fastq.gz 509.4 MB
EGAF00002529805 fastq.gz 519.8 MB
EGAF00002529806 fastq.gz 554.7 MB
EGAF00002529807 fastq.gz 566.7 MB
EGAF00002529808 fastq.gz 715.1 MB
EGAF00002529809 fastq.gz 708.4 MB
EGAF00002529810 fastq.gz 543.0 MB
EGAF00002529811 fastq.gz 553.4 MB
EGAF00002529812 fastq.gz 679.6 MB
EGAF00002529813 fastq.gz 670.9 MB
EGAF00002529814 fastq.gz 682.7 MB
EGAF00002529815 fastq.gz 673.0 MB
EGAF00002529816 fastq.gz 695.2 MB
EGAF00002529817 fastq.gz 690.9 MB
EGAF00002529818 fastq.gz 500.0 MB
EGAF00002529819 fastq.gz 511.0 MB
EGAF00002529820 fastq.gz 518.9 MB
EGAF00002529821 fastq.gz 530.6 MB
EGAF00002529822 fastq.gz 615.2 MB
EGAF00002529823 fastq.gz 606.6 MB
EGAF00002529824 fastq.gz 530.6 MB
EGAF00002529825 fastq.gz 540.6 MB
EGAF00002529826 fastq.gz 462.2 MB
EGAF00002529827 fastq.gz 461.5 MB
EGAF00002529828 fastq.gz 530.9 MB
EGAF00002529829 fastq.gz 541.0 MB
EGAF00002529830 fastq.gz 539.9 MB
EGAF00002529831 fastq.gz 549.5 MB
EGAF00002529832 fastq.gz 615.2 MB
EGAF00002529833 fastq.gz 608.0 MB
EGAF00002529834 fastq.gz 544.1 MB
EGAF00002529835 fastq.gz 542.7 MB
EGAF00002529836 fastq.gz 466.5 MB
EGAF00002529837 fastq.gz 465.7 MB
EGAF00002529838 fastq.gz 708.7 MB
EGAF00002529839 fastq.gz 701.6 MB
EGAF00002529840 fastq.gz 656.6 MB
EGAF00002529841 fastq.gz 648.2 MB
EGAF00002529842 fastq.gz 486.3 MB
EGAF00002529843 fastq.gz 496.1 MB
EGAF00002529844 fastq.gz 479.3 MB
EGAF00002529845 fastq.gz 488.2 MB
EGAF00002529846 fastq.gz 669.7 MB
EGAF00002529847 fastq.gz 666.3 MB
EGAF00002529848 fastq.gz 511.1 MB
EGAF00002529849 fastq.gz 520.2 MB
EGAF00002529850 fastq.gz 635.9 MB
EGAF00002529851 fastq.gz 626.7 MB
EGAF00002529852 fastq.gz 548.1 MB
EGAF00002529853 fastq.gz 548.8 MB
EGAF00002529854 fastq.gz 499.0 MB
EGAF00002529855 fastq.gz 509.0 MB
EGAF00002529856 fastq.gz 587.3 MB
EGAF00002529857 fastq.gz 582.8 MB
EGAF00002529858 fastq.gz 520.4 MB
EGAF00002529859 fastq.gz 519.7 MB
EGAF00002529860 fastq.gz 524.9 MB
EGAF00002529861 fastq.gz 535.1 MB
EGAF00002529862 fastq.gz 534.4 MB
EGAF00002529863 fastq.gz 545.6 MB
EGAF00002529864 fastq.gz 477.0 MB
EGAF00002529865 fastq.gz 475.5 MB
EGAF00002529866 fastq.gz 744.1 MB
EGAF00002529867 fastq.gz 736.4 MB
EGAF00002529868 fastq.gz 467.8 MB
EGAF00002529869 fastq.gz 466.5 MB
EGAF00002529870 fastq.gz 484.5 MB
EGAF00002529871 fastq.gz 492.2 MB
EGAF00002529872 fastq.gz 680.5 MB
EGAF00002529873 fastq.gz 672.1 MB
EGAF00002529874 fastq.gz 516.8 MB
EGAF00002529875 fastq.gz 527.4 MB
EGAF00002529876 fastq.gz 531.7 MB
EGAF00002529877 fastq.gz 533.3 MB
EGAF00002529878 fastq.gz 418.1 MB
EGAF00002529879 fastq.gz 418.9 MB
EGAF00002529880 fastq.gz 356.0 MB
EGAF00002529881 fastq.gz 355.0 MB
EGAF00002529882 fastq.gz 490.4 MB
EGAF00002529883 fastq.gz 488.4 MB
EGAF00002529884 fastq.gz 458.0 MB
EGAF00002529885 fastq.gz 455.7 MB
EGAF00002529886 fastq.gz 640.6 MB
EGAF00002529887 fastq.gz 632.1 MB
EGAF00002529888 fastq.gz 527.3 MB
EGAF00002529889 fastq.gz 526.9 MB
EGAF00002529890 fastq.gz 625.4 MB
EGAF00002529891 fastq.gz 616.5 MB
EGAF00002529892 fastq.gz 682.6 MB
EGAF00002529893 fastq.gz 676.5 MB
EGAF00002529894 fastq.gz 534.8 MB
EGAF00002529895 fastq.gz 545.9 MB
EGAF00002529896 fastq.gz 110.6 MB
EGAF00002529897 fastq.gz 109.5 MB
EGAF00002529898 fastq.gz 476.0 MB
EGAF00002529899 fastq.gz 484.4 MB
EGAF00002529900 fastq.gz 631.7 MB
EGAF00002529901 fastq.gz 627.5 MB
EGAF00002529902 fastq.gz 460.3 MB
EGAF00002529903 fastq.gz 468.3 MB
EGAF00002529904 fastq.gz 475.4 MB
EGAF00002529905 fastq.gz 490.4 MB
EGAF00002529906 fastq.gz 512.5 MB
EGAF00002529907 fastq.gz 510.8 MB
EGAF00002529908 fastq.gz 527.8 MB
EGAF00002529909 fastq.gz 539.5 MB
EGAF00002529910 fastq.gz 511.9 MB
EGAF00002529911 fastq.gz 522.0 MB
EGAF00002529912 fastq.gz 457.0 MB
EGAF00002529913 fastq.gz 464.8 MB
EGAF00002529914 fastq.gz 397.2 MB
EGAF00002529915 fastq.gz 404.0 MB
EGAF00002529916 fastq.gz 518.7 MB
EGAF00002529917 fastq.gz 527.6 MB
EGAF00002529918 fastq.gz 510.6 MB
EGAF00002529919 fastq.gz 514.6 MB
EGAF00002529920 fastq.gz 549.3 MB
EGAF00002529921 fastq.gz 549.0 MB
EGAF00002529922 fastq.gz 472.9 MB
EGAF00002529923 fastq.gz 480.3 MB
EGAF00002529924 fastq.gz 541.8 MB
EGAF00002529925 fastq.gz 539.9 MB
EGAF00002529926 fastq.gz 530.4 MB
EGAF00002529927 fastq.gz 531.4 MB
EGAF00002529928 fastq.gz 642.4 MB
EGAF00002529929 fastq.gz 633.2 MB
EGAF00002529930 fastq.gz 496.1 MB
EGAF00002529931 fastq.gz 505.8 MB
EGAF00002529932 fastq.gz 684.4 MB
EGAF00002529933 fastq.gz 676.6 MB
EGAF00002529934 fastq.gz 518.5 MB
EGAF00002529935 fastq.gz 518.2 MB
EGAF00002529936 fastq.gz 719.1 MB
EGAF00002529937 fastq.gz 708.1 MB
EGAF00002529938 fastq.gz 612.5 MB
EGAF00002529939 fastq.gz 606.9 MB
EGAF00002529940 fastq.gz 631.9 MB
EGAF00002529941 fastq.gz 623.3 MB
EGAF00002529942 fastq.gz 534.8 MB
EGAF00002529943 fastq.gz 545.6 MB
EGAF00002529944 fastq.gz 665.2 MB
EGAF00002529945 fastq.gz 658.2 MB
EGAF00002529946 fastq.gz 441.2 MB
EGAF00002529947 fastq.gz 452.0 MB
EGAF00002529948 fastq.gz 729.9 MB
EGAF00002529949 fastq.gz 720.8 MB
EGAF00002529950 fastq.gz 579.0 MB
EGAF00002529951 fastq.gz 591.7 MB
EGAF00002529952 fastq.gz 490.8 MB
EGAF00002529953 fastq.gz 505.7 MB
EGAF00002529954 fastq.gz 533.9 MB
EGAF00002529955 fastq.gz 527.5 MB
EGAF00002529956 fastq.gz 459.0 MB
EGAF00002529957 fastq.gz 475.2 MB
EGAF00002529958 fastq.gz 526.7 MB
EGAF00002529959 fastq.gz 525.7 MB
EGAF00002529960 fastq.gz 531.9 MB
EGAF00002529961 fastq.gz 542.5 MB
EGAF00002529962 fastq.gz 628.4 MB
EGAF00002529963 fastq.gz 622.2 MB
EGAF00002529964 fastq.gz 504.1 MB
EGAF00002529965 fastq.gz 513.3 MB
EGAF00002529966 fastq.gz 730.9 MB
EGAF00002529967 fastq.gz 723.9 MB
EGAF00002529968 fastq.gz 517.3 MB
EGAF00002529969 fastq.gz 528.9 MB
EGAF00002529970 fastq.gz 74.9 MB
EGAF00002529971 fastq.gz 74.1 MB
EGAF00002529972 fastq.gz 487.7 MB
EGAF00002529973 fastq.gz 498.8 MB
272 Files (147.4 GB)