TERT rearrangements are frequent in neuroblastoma and identify aggressive tumors

Policy for EGAS00001001479

European Genome-Phenome Archivec/o European Bioinformatics InstituteWellcome Trust Genome CampusHinxtonCambridgeCB10 1SDUnited KingdomTo whom it may concern,This document refers to the data set, EGAS00001001479, which has been submitted to the European Genome Archive (EGA) for the restricted access by legitimate academic institutions that have agreed to comply with the terms of a Data Access Agreement drafted by the Consortium Data Access Committee (CDAC) of the AMC Neuroblastoma Study Group. There are a number of steps that a researcher must take to obtain access to this data and the process is overseen by our Data Access Committee, called AMC Neuroblastoma Study Group Data Access Committee (r.versteeg@amc.uva.nl). Prof. Dr. Rogier Versteeg is head of the dept of Oncogenomics, Academic Medical Center, Amsterdam and is authorized to approve researchers to have encrypted access to the data submitted to the EGA. Please be advised that Dr. Jan Koster (Jankoster@amc.uva.nl) is authorized to upload data to the EGA for archiving and distribution as part of your submission process, which will enable approved researchers to have encrypted access to the data. We can confirm that this submission is consistent with the informed consent of the participants of the study or has been granted ethical approval and is in accordance with the applicable laws and regulations.Sincerely,Prof. Dr. Rogier Versteeg