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Data Use Ontology

Data Use Ontology at EGA

The EGA is committed to its involvement in the work of GA4GH. In an effort to enhance data discoverability and streamline data access, EGA have implemented the use of the Data Use Ontology (DUO), based on consent codes as described in Dyke et al. 2017. The Data Use Ontology codes will be displayed on the live dataset page of your submission to advise any would be requestor on how the data can be used and also to enhance data discoverability as users will be able to search on these codes to find applicable datasets.

Term Shorthand Label Description
DUO:0000004 NRES no restriction This data use permission indicates there is no restriction on use.
DUO:0000042 GRU general research use This data use permission indicates that use is allowed for general research use for any research purpose.
DUO:0000006 HMB health or medical or biomedical research This data use permission indicates that use is allowed for health/medical/biomedical purposes; does not include the study of population origins or ancestry.
DUO:0000007 DS disease specific research This data use permission indicates that use is allowed provided it is related to the specified disease.
DUO:0000011 POA population origins or ancestry research only This data use permission indicates that use of the data is limited to the study of population origins or ancestry.
DUO:0000012 RS research specific restrictions This data use modifier indicates that use is limited to studies of a certain research type.
DUO:0000015 NMDS no general methods research This data use modifier indicates that use does not allow methods development research (e.g., development of software or algorithms).
DUO:0000016 GSO genetic studies only This data use modifier indicates that use is limited to genetic studies only (i.e., studies that include genotype research alone or both genotype and phenotype research, but not phenotype research exclusively)
DUO:0000018 NPUNCU not for profit, non commercial use only This data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
DUO:0000019 PUB publication required This data use modifier indicates that requestor agrees to make results of studies using the data available to the larger scientific community.
DUO:0000020 COL collaboration required This data use modifier indicates that the requestor must agree to collaboration with the primary study investigator(s).
DUO:0000021 IRB ethics approval required This data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.
DUO:0000022 GS geographical restriction This data use modifier indicates that use is limited to within a specific geographic region.
DUO:0000024 MOR publication moratorium This data use modifier indicates that requestor agrees not to publish results of studies until a specific date.
DUO:0000025 TS time limit on use This data use modifier indicates that use is approved for a specific number of months.
DUO:0000026 US user specific restriction This data use modifier indicates that use is limited to use by approved users.
DUO:0000027 PS project specific restriction This data use modifier indicates that use is limited to use within an approved project.
DUO:0000028 IS institution specific restriction This data use modifier indicates that use is limited to use within an approved institution.
DUO:0000029 RTN return to database or resource This data use modifier indicates that the requestor must return derived/enriched data to the database/resource.
DUO:0000043 CC clinical care use This data use modifier indicates that use is allowed for clinical use and care.
DUO:0000044 NPOA population origins or ancestry research prohibited This data use modifier indicates use for purposes of population, origin, or ancestry research is prohibited.
DUO:0000045 NPU not for profit organisation use only This data use modifier indicates that use of the data is limited to not-for-profit organisations.
DUO:0000046 NCU non-commercial use only This data use modifier indicates that use of the data is limited to not-for-profit use.

Point to Notice: For the consent code DUO:0000007 where data is restricted to use on a specific disease, please accompany it with an appropriate ontology from MONDO e.g., If the data is restricted to the use of research into juvenile idiopathic arthritis the code should be displayed as DUO:0000007; MONDO:0011429.